Clients

Updated July, 2011

International Genetic Alliance (IGA)
IGA is an alliance of continental and regional alliances of parent and patient organisations with an involvement in the opportunities and implications of genetics and biotechnology regarding its potential for prevention and treatment of serious diseases.

The Foundation for Information on Animal Research
(Stichting Informatie Dierproeven)
Provides information on scientific research involving animals to the Dutch public and communicates from a patient perspective. The foundation is acknowledged by the Dutch government as important intermediate between the scientific community and the public at large.

Dutch Association for Laboratory animal science
(Nederlandse Vereniging voor Proefdierkunde – NVP)
An association to advance scientific understanding and knowledge of the use, care and welfare of laboratory animals and promote refinement, reduction and replacement.

Genzyme
A biotechnology company developing and applying advanced technologies in the life sciences

European Federation of Pharmaceutical Companies and Associations (EFPIA)
Represents the research-based pharmaceutical industry operating in Europe

University of Utrecht (the Netherlands)
One of Europe’s largest and most prominent institutes of research and education. Utrecht University offers the broadest spectrum of disciplines available in the Netherlands, innovative research and liaises with universities and research centers all over the world.

European Genetic Alliances’ Network (EGAN)
EGAN is working for a voice in research and health policy and seeks a world in which genetic diseases are understood, effectively treated, prevented and the people affected supported.

World Alliance of Neuromuscular Disorder Associations (WANDA)
WANDA seeks a world in which neuromuscular disorders are understood and eradicated and in which the people affected are well supported.

Week of the Chronically Ill
(Week van de Chronisch Zieken)
Is a joint initiative of Dutch organisations of patients, care takers, medical professionals, researchers, employers and employees. The purpose is to inform the public about new developments and current state of affairs in care and society in general for people with a chronic disease.

Radboud University Nijmegen (The Netherlands) – Centre for Society and Genomics
The Centre for Society and Genomics (CSG) describes, analyses and improves the relationship between society and genomics research. By doing so, CSG improves the way in which genomics meets the expectations and needs of society.

Terrappin
Conference organiser of the 1st World Orphan Drug Congress in Geneva, Switzerland.

Prosensa
A biopharmaceutical company focused on the discovery, development and commercialization of RNA modulating therapeutics. The company targets genetic disorders with a large unmet medical need, with primary focus on neuromuscular disorders.

TheMeeting – Optimal role of patient organisations in drug development –
Conference about how partnership with patient organisations can contribute to more efficient drug development in all its aspects.

GlaxoSmithKline
One of the world’s leading research-based pharmaceutical and healthcare companies. With offices over 100 countries.

Sanofi
A global healthcare leader focused on patients’ needs and offers a range of essential healthcare assets. With offices over 100 countries.